Rare Diseases International is the global alliance of people living with a rare disease of all nationalities across all rare diseases.

RDI’s mission is to be a strong common voice for rare disease patients and their families around the world.

We advocate to make rare diseases an international policy priority, represent our members on international platforms, and help members build their capacity to act locally, regionally and globally.

We bring together national and regional rare disease patient alliances from around the world as well as international disease-specific federations to create the global alliance of rare disease patients and families.

RDI is a network of over 70 member organisations representing rare disease patient groups in over 100 countries worldwide.