THE GLOBAL ALLIANCE OF PERSONS LIVING WITH A RARE DISEASE RDI IS A STRONG VOICE FOR PERSONS LIVING WITH A RARE DISEASE AND THEIR FAMILIES AROUND THE WORLD. our priorities UN Resolution on Persons Living with a Rare Disease Universal Health Coverage Collaborative Global Network for Rare Diseases BEcome a member JOIN RDI RDI MEMBERS RDI EVENTS Rare Diseases International’s Informal Side-Event to the 75th World Health Assembly, 24 May 2022, 18.30 CET – 20.30 CET REGISTER Rare Disease Day 2022 Event, 28 February 2022 WATCH global EVENTS Loading view. Today Now Now - 5/22/2022 May 22 Select date. May 19 May 17 - May 19 Online workshop: Understanding access and reimbursement May 19 7:00 pm - 8:30 pm How Patient Involvement is Making a Difference in HTA: PCIG Webinar May 22 All day Walk the Talk: Health For All Challenge, WHO Previous Events Today Next Events Subscribe to calendar Google Calendar iCalendar Export .ics file milestones RARE DISEASES INTERNATIONAL FIRST UN POLICY EVENT UHC INCLUDES RARE DISEASES AGREEMENT WITH WHO UN RESOLUTION GLOBAL ADVOCACY CAMPAIGN RARE DISEASES INTERNATIONAL 2015 RDI is initiated by EURORDIS and Rare Disease National Alliances for the USA, Canada, Japan, Australia and Russia. Read More FIRST UN POLICY EVENT 2019 RDI co-hosts the first Rare Disease Day Policy Event at the United Nations. Read More UHC INCLUDES RARE DISEASES 2019 Rare Diseases are included in the UN Political Declaration on Universal Health Coverage Read More AGREEMENT WITH WHO 2019 WHO and RDI sign a Memorandum of Understanding for future collaboration Read More UN RESOLUTION 2021 The UN adopts the first-ever UN Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families.” Read More GLOBAL ADVOCACY CAMPAIGN 2021 Families and rare diseases organisations around the world lead a global advocacy campaign calling for the adoption of a Un Resolution in 2021 Advocacy Toolkit SOCIAL MEDIA Tweets by rarediseasesint