#UHC4Rare toolkit

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The Universal Health Coverage for Rare Diseases (#UHC4RareDiseases) Campaign aims to enable patient organisations and the public to advocate for Universal Health Coverage (UHC) policies and programmes that include rare diseases.

#UHC4RareDiseases complements UHC Day (December 12th) and the Rare Disease Day campaign, which calls for equity for Persons Living with a Rare Disease (UHC) and families living with a rare disease.

The #UHC4RareDiseases Toolkit provides practical tools to raise awareness and encourage policymakers to address rare diseases to fulfil their commitment to UHC.

How to use the #UHC4RareDiseases Toolkit

Download the #UHC4RareDiseases Toolkit

1. FACT SHEET on UHC and rare diseases

Download factsheet in Arabic, French, Mandarin and Spanish

2. LETTER TEMPLATE to send to policymakers/ MPs/ local or national Health Ministries


4. RDI UHC Day Statement on Health Equity

Key Documents


RDI – UHC Day 2022

RDI – UHC Day 2021

RDI – UHC Day 2020

RDI GLOBAL MEETING – Leveraging UHC to Advance Rare Disease Policy, May 2019

Durhane Wong-Rieger, RDI Chair and President of the Canadian Organization for Rare Disorders (CORD) talks about advocating for the integration of rare diseases in national policies within the framework of UHC.

Alba Ancochea, CEO of Federacion Española de Enfermedades Raras (FEDER), shares the Spanish experience promoting UHC in national policy.