Rare Diseases International members

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Alliance Maladies Rares
FRANCE
Full Member
http://www.alliance-maladies-rares.org
Arabic Organisation for RareDiseases
ISRAEL/PALESTINE
Full Member
http://www.aordis.org
Asociacion de Familiares y Afectados de Lipodistrofias (AELIP)
Spain
Associate Member
http://www.aelip.org/
Associacao Brasileira de Enfermedades Raras
BRAZIL
Full Member
http://www.feberraras.wix.com/feber-raras
Association ANNA
FRANCE
Associate Member

Associçaō Portuguesa CDG
PORTUGAL
Associate Member
http://www.apcdg.com/
Blackswan Foundation
SWITZERLAND
Associate Member
http://www.blackswanfoundation.ch/en/
Botswana Organization for Rare Diseases (BORDIS)
BOTSWANA
Associate Member

Canadian Organization for Rare Disorders
CANADA
Full Member
http://www.raredisorders.ca
Chinese Organization for Rare Disorders
CHINA
Full Member
http://www.hanjianbing.org


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The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.European Conference on Rare Diseases An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases