Committees and Working Groups

Committees and Working Groups are constituted to govern the organisation and push forward policy change in specific areas selected as priority topics by the Council of RDI.

The purpose, specific objectives, deliverables and timeframe of the Standing Committees and Working Groups are spelled out in the Terms of Reference of each Group.

Advocacy Committee

The Advocacy Committee shall be responsible for developing and recommending priorities, initiatives and policies for the Organisation; for preparing position papers or statements or declaration, as well as to review any position, statement, declaration of petition considered for endorsement by the Organisation


Working Group on Rare Disease Research

The Working Group on Research will be responsible for feeding RDI’s position on research and steering all research-related activities of the Organisation.