Join the Call!

Free, downloadable and updated tools to support the call for a UN Resolution on Addressing the Challenges of Persons Living with a Rare Disease (PLWRD) and their Families.

The #Resolution4Rare tools are designed to empower persons living with a rare disease, their families, civil society groups, and all who want to help amplify the global call for a UN Resolution in 2021.

New materials will be uploaded every month.

Coming in June, tools in more languages, new social media images and an online meetings kit!

Every voice counts.

Video – Call for a UN Resolution and #Resolution4Rare Tools


Tell your country’s leaders and policy-makers why they should adopt the UN General Assembly (UNGA) Resolution

Understand the Process

Send to Policy Makers


Join the call. Every voice counts. Raise awareness on all social media channels.

Hashtags – #Resolution4Rare #LeaveNoOneehind

Handles – @rarediseasesint @eurordis @ngorarediseases

Facebook, LinkedIn & Twitter

Key Asks – What is the rare disease community asking for:

Instagram & WhatsApp

Infographics & Factsheets

infographic on the UN Resolution