Resolution4Rare Toolkit

Free, downloadable and updated tools.

Learn more about the UN Resolution. Call on the UN and its members to keep their promise


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Dear UN

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What do you want the UN and governments around the world to know about life with a rare disease?

I would love to see more knowledge and awareness in the general public with regard to rare diseases. So underrepresented and often misunderstood. Lyndsey – Ireland
I am 43 years old and was diagnosed a few years ago.
I am a lawyer, and at work, despite having all the necessary certificates, I was stigmatized and accused of inventing my disease. Bertilda- Colombia
As a caregiver I have had to leave everything – study, work and my life – to dedicate myself full time to my son, 24/7. It’s not just taking care of the disease, but also the house and daily expenses. Mother and child – Colombia
As a caregiver, I have had to leave everything – study, work and my life – to dedicate myself full time to my son, 24/7.
It’s not just taking care of the disease, but also the house and daily expenses. Mother and child – Colombia
It took me 12 years before I got the correct diagnosis.
This led to me asking way too much from my body, pushing so hard that it left me wheelchair-bound, which could have been avoided.




Infographics

infographic on the UN Resolution