Join the Call!
Free, downloadable and updated tools to support the call for a UN Resolution on Addressing the Challenges of Persons Living with a Rare Disease (PLWRD) and their Families.
The #Resolution4Rare tools are designed to empower persons living with a rare disease, their families, civil society groups, and all who want to help amplify the global call for a UN Resolution in 2021.
New materials will be uploaded every month.
Coming in June, tools in more languages, new social media images and an online meetings kit!
Every voice counts.
Video – Call for a UN Resolution and #Resolution4Rare Tools
Tell your country’s leaders and policy-makers why they should adopt the UN General Assembly (UNGA) Resolution
Understand the Process
Send to Policy Makers
Reach out to local and international media, and follow the call for a UNGA Resolution in the press.
The UNGA Resolution in the Media
Join the call. Every voice counts. Raise awareness on all social media channels.
Hashtags – #Resolution4Rare #LeaveNoOneehind
Handles – @rarediseasesint @eurordis @ngorarediseases