RDI launches mapping rare for rare disease day 2024

On the occasion of Rare Disease Day 2024, RDI launched Mapping Rare, a website highlighting the many achievements of RDI’s global community. The first group achievements includes a humanitarian mission to the Ukraine by DEBRA International, an awareness campaign in Malaysia, the creation of a national rare disease network in Canada, a successful campaign to improve education options for children with rare diseases in Tanzania, and much more! Visit the Mapping Rare page to learn more.

The launch of Mapping Rare was celebrated with a webinar featuring all of the participating organizations and three keynote speakers: Dr. Roberto Giugliani, Dr. Rüdiger Krech and Dr. Shinya Iimura. The webinar was viewed by over 250 attendees on Zoom and Facebook Live. If you missed it, you can watch it here:

Do you have an achievement to submit to the map? We will be putting out a new call for submissions soon via our RDI members’ mailing list.