media coverage

Articles

• Leave no one behind – UN resolution for families living with a rare disease, Health Awareness, 2021
• Rare diseases are often ignored by public policies, the journey towards full inclusion is long, Nonprofit, 2021
• Making rare diseases a human rights priority, Health Awareness, 2021
• Qatar affirms commitment to actively contribute to international efforts to achieve comprehensive, sustainable development, Gulf Times, 2021
• Letizia takes the floor before the United Nations on Rare Diseases, Market Research Telecast, 2021

Podcasts

• World Haemophilia Day – Policy Day, 2021
• Finding rare diseases in common places, Life and Sciences, 2021

Videos

• Adult Life & Duchenne, World Duchenne Awareness, 2021