Rare Disease Day photo exhibition honouring life with a rare disease
Organised by RDI on the margins of the 43rd Session of the Human Rights Council
25 February 2020, Palais des Nations, Geneva (Switzerland)
‘Universal Health Coverage: including rare diseases to leave no one behind’
Event by RDI in collaboration with the NGO Committee for Rare Diseases
23 May 2019, Palais des Nations, Geneva (Switzerland)
‘How transformational digital technologies can contribute to leave no one behind in UHC: the case of rare diseases’
Event sponsored by the Permanent Missions of the EU, Romania and Kuwait, with an additional nine Member States and the support of RDI
23 May 2019, Palais des Nations, Geneva (Switzerland)
Second High-Level Event of the NGO Committee for Rare Diseases
Co-organised by Agrenska, EURORDIS and RDI
21 February 2019, UN Headquarters, New York (USA)
‘The Right to Health: The Rare Disease Perspective’
Organised by RDI to mark the occasion of Rare Disease Day
10 February 2017, Campus Biotech, Geneva (Switzerland)
‘Global Gathering for Rare Diseases’
An initiative by EURORDIS and Agrenska Foundation, in cooperation with RDI
11 November 2016, UN Headquarters, New York (USA)