Share your event

We want to help spread the word about our members’ events. Share the details of your events with us and we can help to ensure that rare disease stakeholders from across the world know about it.


What kind of events can we promote?

We can promote any events being organised by RDI members provided that they are open to anyone to attend. This could be a conference, a side-event to a conference or meeting, a fundraising event or even a webinar. 


How will we promote your event?

We will add the information you provide to the Member Events section on the RDI website. We will also tweet from the RDI twitter account and include a link to all member events in our monthly newsletter, which is sent to all Rare Diseases International members.


What information do you need to send us?

Complete the form below to give us all of the important details about your event. The more information you can provide, the better we will be able to promote your event.

Event information

 

Verification

Join the Rare Disease Day Working Group!

The Rare Disease Day Working Group is made up of representatives from national alliances around the world who meet once a month (June – February) via teleconference to discuss and shape key elements of the Rare Disease Day campaign including key messages and communication materials.

To join the up-coming meetings please tick the box below. For more information about the Rare Disease Day Working Group please contact: Lucy Michaeloudis [email protected]



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