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Rare Diseases International

  • About RDI
    • Life with a Rare Disease
    • Vision & Mission
    • Activity Reports & Milestones
    • RDI Members
    • RDI Council – Governance
    • Our Team
    • Committees
    • Strategic Partners
    • Funding
  • Advocacy
    • International Advocacy
      • UN Resolution on PLWRD
      • Universal Health Coverage
      • Inclusion & Human Rights
    • Position Papers
    • Policy Events
  • Engagement
    • RDI Strategic Engagement
      • RDI Engage & Connect
    • Rare Disease Day
    • Meet the Patient Advocates
  • Global Initiatives
    • Health Equity & Access
      • MoU with WHO
      • Definition of Rare Diseases
      • Global Network for Rare Diseases
      • Access Working Group
    • Diagnosis
      • Global Diagnosis Survey
      • Global Commission
      • Genomic Technologies
    • Monitoring & Dissemination
      • Global State of the Art Resource
  • Get Involved
    • RDI Engage & Connect
    • Become a Member
    • RDI Annual Meetings
    • RDI Alliance of Companies
    • Contact RDI
    • Donate
  • Donate
  • English
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Our team

Dolores Cvitičanin
Public Affairs Manager

[email protected]

Nida Hasan
Strategic Engagement Manager

[email protected] 

Hlawulani Mkhabela
Strategic Engagement Manager

[email protected]

Ayda Ramazzina
Director of Operations

[email protected]

Mary Wang
Programme Director

[email protected]

Matt Bolz-Johnson
Programme Director - Collaborative Global Network for Rare Diseases

[email protected]

Volunteers:

Lucia Monaco
RDI Volunteer Policy Advisor

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