RDI Secretariat

Flaminia Macchia

Executive Director

[email protected]

Ayda Ramazzina

Governance & Development Manager

[email protected]

Clara Hervás

International Advocacy

[email protected]

Hlawulani Mkhabela

Outreach and Engagement Manager

[email protected]


Matt Bolz-Johson

RDI Programme Director – Collaborative Global Network for Rare Diseases

Concha Mayo

RDI Programme Manager – Collaborative Global Network for Rare Diseases

Veronica Lopez Gousset

CGN4RD Concept and Sustainability volunteer

[email protected]