RDI Secretariat

Flaminia Macchia

Executive Director

[email protected]

Clara Hervás

Public Affairs Manager

[email protected]

Hlawulani Mkhabela

Strategic Engagement Manager

[email protected]

Ayda Ramazzina

Governance & Development Manager

[email protected]

Mary Wang

Science Policy Manager

[email protected]

Nida Hasan

Global Capacity Building Junior Manager

[email protected]


Matt Bolz-Johson

Programme Director – Collaborative Global Network for Rare Diseases

[email protected]

Concha Mayo

Programme Manager – Collaborative Global Network for Rare Diseases

[email protected]

Veronica Lopez Gousset

Programme Manager

[email protected]


Volunteers:

Claudia Hirawat
Senior Liaison to the UN in New York – EURORDIS International Advocacy Team (Volunteer)
Paola Ricci
Senior Liaison in Geneva – EURORDIS International Advocacy Team (Volunteer)