RDI Secretariat

Flaminia Macchia

Executive Director

[email protected]


Ayda Ramazzina

Governance & Development Manager

[email protected]


Clara Hervás

Public Affairs Manager

[email protected]


Hlawulani Mkhabela

Outreach and Engagement Manager

[email protected]


Matt Bolz-Johson

Programme Director – Collaborative Global Network for Rare Diseases


Concha Mayo

Programme Manager – Collaborative Global Network for Rare Diseases

[email protected]


Volunteers:

Veronica Lopez Gousset
Concept and Sustainability Volunteer – Collaborative Global Network for Rare Diseases
Rasha Alnaibari
Senior Liaison to the UN System (New York)
EURORDIS International Advocacy Team (Volunteer)
Claudia Hirawat
Senior Liaison to the UN System (New York)
EURORDIS International Advocacy Team (Volunteer)