Universal Health Coverage (UHC) ensures all people, everywhere, can access quality health services with financial protection and are not pushed into poverty by healthcare costs.
All UN Member States have agreed to work to achieve Universal Health Coverage by 2030, as part of the Sustainable Development Goals.
In 2019, countries adopted the UN Political Declaration on UHC. Thanks to advocacy from the rare disease community, the Declaration includes rare diseases. It commits all governments to strengthen efforts to address rare diseases in their plans to achieve UHC.
Over several years RDI has led a number of actions, culminating in the inclusion of rare diseases in the UN Political Declaration. In December 2019, RDI joined the Civil Society Engagement Mechanism of UHC2030, a body founded by the World Bank and the World Health Organisation to advance equitable UHC policies and action.
We also offer rare disease patient groups tools and resources to advocate for the implementation of national and international UHC policies that address rare diseases.
- RDI UHC Day Statement on Health Equity, 13 December 2021
- UHC2030 CSEM Health for All Advocacy Toolkit, 2021
- Position paper ‘Rare Diseases: Leaving No One Behind in Universal Health Coverage’, April 2019
- Call for the integration of rare diseases into the UN Political Declaration on UHC launched at the Second High Level Event of the NGO Committee for Rare Diseases, 21 February 2019, at the UN NYC. More information on the event.
- Written statement at the UN High Level Meeting on UHC on 23 September 2019.
- UN Political Declaration on UHC, September 2019
- Rare diseases are mentioned in the first edition of UHC2030’s ‘State of Commitment to UHC‘ report