RDI Capacity Building provides persons living with a rare disease (PLWRD), patient advocates and rare disease organisations a platform for learning, knowledge-sharing, networking, sharing experiences, and developing best practice.
RDI ensures that the voice and needs of the community of persons living a rare disease are at the centre of all capacity building activities. The programme priorities issues of common interest to rare disease patient organisations across the globe and topics identified by the membership of RDI.
RDI Member Meetings
Interactive workshops, meetings and webinars on key RDI programme areas and common advocacy messages. Hosted every 4 – 8 weeks, RDI Member Meetings bring our community together to work together, provide feedback and learn about ongoing and upcoming initiatives.
Past RDI Member Meeting
RDI Member-Led Workshops
RDI Members may design and host a workshop or meeting to share information, educate or call for collaboration on topics of interest to rare disease patient organisations and PLWRD across the globe. RDI supports event communication, registration, and dissemination of event recordings and materials online. Workshops are completely free and open to all.
Member-Led Workshop Schedule
The Canadian Organization for Rare Disorders (CORD) is hosting a three-part workshop series entitled, “Knowledge-Sharing on Advanced Therapies”.
Workshops offer an introduction to cell and gene therapies, explore the social, ethical and policy implications of genome editing, and examine case studies from the rare disease field.
RDI Conference Support
RDI supports rare disease conferences across the globe and promotes the participation of rare disease patient organisations in key local and international conferences and events.
RDI Conference Support aims to:
How does it work?
Eligibility is not restricted to RDI members. However, conferences initiated by patient organisation members of RDI will be given priority.
Conference aims and objectives must be coherent with RDI’s mission and be relevant to rare disease patients and patient organisations.
RDI offers three levels of support, shown below:
Level One : Endorsed by RDI
Level 2 – In Partnership with RDI
Level 3 – Co-organised with RDI
Contact RDI to make a written request for RDI Conference Support.
RDI Conference Fellowships
RDI offers conference fellowships to enable patient groups with limited means to take part in rare diseases conferences and events to help build their network and capacities.
RDI Conference Fellowships aims to:
How does it work?
Subscribe the RDI Monthly Newsletter to view fellowship opportunities
Contact RDI to inquire about fellowship opportunities
Past Conference Fellowships
For more information on RDI Capacity Building contact, Hlawulani Mkhabela.
RDI Capacity Building corporate donors: