RDI Capacity Building aims to strengthen the global rare disease civil community and enable patient organisations to drive local, national and regional advocacy.

Programme Objectives:
- Help to build the capacities of patient advocates and their organisations around the world
- Empower RDI Member Organisations to shape and contribute to RDI initiatives and programmes
- Encourage meaningful participation of patient advocates in global collaborations and initiatives
- Support networking of rare disease organisations with each other and other stakeholders
- Facilitate sharing of knowledge and best practices
RDI Capacity Building 2022
RDI is re-launching the Capacity Building Programme. The new programme will begin in 2022 and is organised along 3 key topic areas and tracks identified by RDI Members



Each content track will be presented through crowd-sourced materials from our members, toolkits & resources, and workshops, as well as live meetings and opportunities for discussion.
RDI 2021 Events
- RDI Member Consultation on UN Resolution for Rare Diseases, 14 January 2021
- RDI Member Meeting on the Collaborative Global Network for Rare Diseases, 4 February 2021
- RDI Annual Meeting, 26 May 2021
- RDI Webinar on Global State of the Art Resource, 21 April 2021
- UHC Day Event – Strengthening Care Systems through Equity – 15 December 2021
Member-led Workshops 2021
Canadian Organization for Rare Disorders (CORD) – “Knowledge-Sharing on Advanced Therapies”. (workshop series)
Conference and Fellowship Support 2021
- RE(ACT) Congress and IRDiRC Conference 2021 – 13-15 January (fellowships and media partnership)
- RAREsummit, 7 October 2021 (media partner)
- World Orphan Drug Congress, USA, 25 – 27 August (fellowships and media partnership)
- World Orphan Drug Congress, Europe, 14-6 November 2021 (fellowships and media partnership)
- Asia Pacific Alliance of Rare Disease Organizations (APARDO) Annual Conference, 14 – 15 December 202 (partnership)
- African Summit on Rare Diseases, 1-3 December 2021 (partnership)





For more information contact, Hlawulani Mkhabela