The RDI Strategic Engagement Programme supports the empowerment of patient groups to help them drive policy change, engage meaningfully in global collaborations, and contribute to RDI programmes and policy action.
RDI ENGAGE & CONNECT
RDI Engage & Connect is the online platform which powers the Strategic Engagement Programme.
Visit the platform for resources and toolkits, fellowship opportunities, a calendar of group meetings and regional conferences, and a database of rare disease events worldwide.
Toolkits and resources are presented on RDI Engage & Connect according to three thematic learning paths:
RDI offers travel and accommodation fellowships to enable patient advocates to attend events worldwide.
Through their participation, patient advocates build a network of support, share learnings and knowledge and strengthen the rare disease civil society movement. Visit RDI Engage & Connect to apply for RDI support.
RDI partners with disease alliances to host regional conferences and events.
Conferences are a platform for patient groups to discuss region-specific topics and coordinate actions that respond to the challenges and opportunities of their region.
Regional Conferences partnerships, 2022:
RDI facilitates, Member-led Discussions, which gather between 10 and 15 participants to dive deep into an issue of common interest to patient advocates.
Meetings provide a space to share knowledge and experiences.
We have partnered with our members to host meetings on a range of topics, from advanced therapies to national plans and patient registries.