RDI LAUNCHED
May 1, 2015
RDI is initiated by Rare Disease National Alliances for USA, Canada, Japan, Australia and Russia and EURORDIS – Rare Disease Europe. Read Statutes
Read moreLANCEMENT DE RDI
May 1, 2015
RDI est lancé par les alliances nationales pour les maladies rares aux États-Unis, au Canada, au Japon, en Australie et en Russie et par EURORDIS – Rare Disease Europe. Lire les statuts
Read moreRDI LOCALIZADO
May 1, 2015
A RDI é iniciada pelas Alianças Nacionais de Doenças Raras para os EUA, Canadá, Japão, Austrália e Rússia e EURORDIS – Rare Disease Europe. Leia os Estatutos
Read moreLANZAMIENTO DE RDI
May 1, 2015
La RDI es iniciada por las Alianzas Nacionales de Enfermedades Raras de Estados Unidos, Canadá, Japón, Australia y Rusia y EURORDIS – Enfermedades Raras Europa. Leer los estatutos
Read moreFormal Registration
May 1, 2018
2018, May – RDI becomes an independent organisation with a separate legal identity RDI Statutes
Read moreEnregistrement formel
May 1, 2018
2018, mai – RDI devient une organisation indépendante avec une identité juridique distincte. Statuts de la RDI
Read moreRegisto formal
May 1, 2018
2018, Maio – RDI torna-se uma organização independente com uma identidade jurídica distinta Estatutos da RDI
Read moreRegistro formal
May 1, 2018
2018, mayo – RDI se convierte en una organización independiente con identidad jurídica propia Estatutos de RDI
Read moreFirst United Nations Policy Event
January 21, 2019
2019, February – the NGO Committee for Rare Diseases and RDI co-organise policy event at the United Nations
Read morePremier événement politique des Nations Unis
January 21, 2019
2019, février – le NGO Committee for Rare Diseases et RDI co-organisent un événement politique aux Nations Unis
Read morePrimeiro Evento de Política das Nações Unidas
January 21, 2019
2019, Fevereiro – o NGO Committee for Rare Diseases e RDI co-organizam evento político nas Nações Unidas
Read morePrimer acto político de las Naciones Unidas
January 21, 2019
2019, febrero – el NGO Committee for Rare Diseases y RDI coorganizan un evento político en las Naciones Unidas
Read moreUHC 2030
September 3, 2019
2019, December – RDI joins the Civil Society Engagement Mechanism of UHC2030
Read moreUHC 2030
September 3, 2019
2019, décembre – RDI se joint à la Mécanisme d’engagement de la société civile de UHC2030
Read moreUHC 2030
September 3, 2019
2019, Dezembro – RDI junta-se à Mecanismo de Engajamento da Sociedade Civil da UHC2030
Read moreUHC 2030
September 3, 2019
2019, diciembre – RDI se une al Mecanismo de participación de la sociedad civil de UHC2030
Read moreUN Declaration on UHC includes Rare Diseases
September 23, 2019
2019, September – Joint advocacy from the global rare diseases community results in the inclusion of rare diseases in the seminal UN Political Declaration on Universal Health Coverage
Read moreLa déclaration de l’ONU sur les soins de santé primaires inclut les maladies rares
September 23, 2019
2019, septembre – Le plaidoyer conjoint de la communauté mondiale des maladies rares aboutit à l’inclusion des maladies rares dans la déclaration politique de l’ONU. Déclaration politique desONU sur la couverture sanitaire universelle
Read moreDeclaração da ONU sobre UHC inclui Doenças Raras
September 23, 2019
2019, Setembro – A defesa conjunta da comunidade global de doenças raras resulta na inclusão de doenças raras no seminal Declaração Política da ONU sobre a Cobertura Universal da Saúde
Read moreLa Declaración de la ONU sobre la CSU incluye las enfermedades raras
September 23, 2019
2019, septiembre – La defensa conjunta de la comunidad mundial de enfermedades raras da como resultado la inclusión de las enfermedades raras en la seminal Declaración política de la ONU sobre la cobertura sanitaria universal
Read moreMoU with WHO
December 19, 2019
2019, December – RDI and the World Health Organization sign Memorandum of Understanding outlining a framework for collaboration
Read moreProtocole d’accord avec l’OMS
December 19, 2019
2019, décembre – RDI et l L’Organisation mondiale de la santé signe un protocole d’accord définissant un cadre de collaboration. ion
Read moreMemorando de Entendimento com a OMS
December 19, 2019
2019, Dezembro – RDI e o Organização Mundial de Saúde assina Memorando de Entendimento que define um quadro de colaboração íon
Read moreMemorando de Entendimiento con la OMS
December 19, 2019
2019, diciembre – RDI y la La Organización Mundial de la Salud firma un Memorando de Entendimiento en el que se establece un marco de colaboración ion
Read moreCOVID-19 STATEMENT
December 1, 2020
2020, June – RDI Member Organisations worldwide publish a common statement on the COVID-19 responses and recovery
Read moreDÉCLARATION COVID-19
December 1, 2020
2020, juin – Les organisations membres de la RDI dans le monde entier publient une déclaration commune sur les réponses et le rétablissement de la situation. Déclaration sur les réponses et le rétablissement de COVID-19
Read moreDECLARAÇÃO COVID-19
December 1, 2020
2020, Junho – As organizações membros da RDI em todo o mundo publicam um declaração sobre as respostas e recuperação da COVID-19
Read moreDECLARACIÓN COVID-19
December 1, 2020
2020, junio – Las Organizaciones Miembros de RDI de todo el mundo publican una Declaración sobre las respuestas y la recuperación de COVID-19
Read moreIRDiRC/RDI Global Working Group
October 1, 2021
November 2021, RDI and the International Rare Diseases Research Consortium (IRDiRC) launch the IRDiRC/RDI Global Acess Working Group to improve access to treatments.
Read moreGroupe de travail mondial IRDiRC/RDI
October 1, 2021
Novembre 2021, RDI et le Consortium International de Recherche sur les Maladies Rares (IRDiRC) lancent le Groupe de travail sur l’accès mondial IRDiRC/RDI pour améliorer l’accès aux traitements.
Read moreGrupo de Trabalho Global IRDiRC/RDI
October 1, 2021
Novembro 2021, a RDI e o International Rare Diseases Research Consortium (IRDiRC) lançam o Grupo de Trabalho de Acesso Global IRDiRC/RDI para melhorar o acesso aos tratamentos.
Read moreGrupo de Trabajo Global IRDiRC/RDI
October 1, 2021
noviembre de 2021, la RDI y el Consorcio Internacional de Investigación de Enfermedades Raras (IRDiRC) lanzan el Grupo de Trabajo de Acceso Global IRDiRC/RDI para mejorar el acceso a los tratamientos.
Read moreUN Resolution
December 16, 2021
16 December, UN General Assembly formally adopts UN Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families”
Read moreResolução da ONU
December 16, 2021
16 de Dezembro, Assembleia Geral da ONU adopta formalmente a Resolução da ONU sobre “Enfrentar os desafios das pessoas que vivem com uma doença rara e das suas famílias”.
Read moreResolución de la ONU
December 16, 2021
16 de diciembre, la Asamblea General de la ONU adopta formalmente la Resolución de la ONU sobre “Cómo afrontar los retos de las personas que viven con una enfermedad rara y sus familias”
Read moreRésolution de l’ONU
December 16, 2021
16 décembre, l’Assemblée générale des ONU adopte officiellement la résolution desONU intitulée “Relever les défis des les Personnes Vivant avec une Maladie Rare et de leurs familles”.
Read moreFormal Side-Event at the UN HLM
September 21, 2023
2023, September – RDI, EURORDIS-Rare Diseases Europe, Agrenska, FEDER and the NGO Committee for Rare Diseases co-organize a formal side event at the United Nations, sponsored by the Permanent Missions of Spain and Sweden and the Ministry of Health of Qatar, on the achieving Universal Health Coverage for PLWRD
Read moreRDI Awarded Special Consultative Status with ECOSOC
July 26, 2024
2024, July – RDI is granted special consultative status with the United Nations Economic and Social Council (ECOSOC) Read more
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