Rare Diseases International is grateful for the financial support provided by:


afm-logo-small  logo-eu-flag


Members’ contributions:

amr prorareaustria  blackswan  retina hkard ipopi_1 debra geneticallianceaustralia

Corporate partners’ contributions:

biogen  Microsoft Word - 1a_Overview_EN_220110_rev.doclogo-pfizer shirevertex

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.European Conference on Rare Diseases An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases