Job Openings

Are you looking for a meaningful opportunity to improve the lives of People Living with a Rare Disease (PLWRD) and their families? We’re looking for a Chief Executive Officer (CEO) to join our international team!

📝 We seek a visionary, community-centred, and collaborative CEO to lead RDI into its next phase of growth and impact. This is a unique opportunity to shape the future of rare disease advocacy, influence global health policy, and make a tangible difference in the lives of millions worldwide.

As CEO, you will drive strategic leadership, operational excellence, and sustainable impact, ensuring RDI remains the leading global voice for people living with rare conditions. You will navigate the challenges facing NGOs in today’s geopolitical and economic climate, adapting the organisation’s structure and funding sources to secure its long-term sustainability.

💻 Fully remote position – RDI is registered as an employer in France, Spain, and Italy. A European-based CEO is preferred, but non-European applicants will be considered.

🔗 Apply now via Oxford HR, who are exclusively managing our recruitment

👉 Closing Date: May 20th, 2026 – 17:00 CEST (Please note that applications will be reviewed on a rolling basis and this may lead to an earlier closing date.)