Inclusion & Human Rights

RDI advocates to advance equity and social inclusion for Persons Living with a Rare Disease and their families.

The challenges of Persons Living with a Rare Disease go far beyond health.

Children living with a rare disease struggle to be integrated into education systems and encounter barriers at every stage of schooling.

Families and Persons Living with a Rare Disease face challenges maintaining decent work and have a greater risk of impoverishment due to the increased costs of care for a rare disease.

Women experience gender inequality and stigma as Persons Living with a Rare Disease. And mothers often have a greater responsibility for caregiving within the home.

Across the globe, our community faces multiple forms of discrimination and barriers to full participation in society.


Key Resources