RDI is a strong voice for Persons Living with a Rare Disease and families around the world.

our priorities

milestones

RARE DISEASES INTERNATIONAL

FIRST UN POLICY EVENT

UHC INCLUDES RARE DISEASES

AGREEMENT WITH WHO

UN RESOLUTION

GLOBAL ADVOCACY CAMPAIGN

RDI is initiated by EURORDIS and Rare Disease National Alliances for the USA, Canada, Japan, Australia and Russia. Read More

RDI co-hosts the first Rare Disease Day Policy Event at the United Nations.

Rare Diseases are included in the UN Political Declaration on Universal Health Coverage

WHO and RDI sign a Memorandum of Understanding for future collaboration

The UN adopts the first-ever UN Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families.”

Families and rare diseases organisations around the world lead a global advocacy campaign calling for the adoption of a Un Resolution in 2021

Feb 1

February 1 - February 3

Feb 8

6:00 pm - 7:30 pm

Feb 15

February 15 @ 8:00 am - February 17 @ 5:00 pm