THE GLOBAL ALLIANCE OF PERSONS LIVING WITH A RARE DISEASE

photo of RDI members with RDI banner

LATEST NEWS

our strategic goals


Enhance the Capacity and Engagement of the Rare Disease Community

Prioritization of Rare Disease in Policy
Financing for Adequate and Sustainable Resources for Rare Disease Care

Improve Access to Treatment and Care for Persons Living with a Rare Disease

EVENTS


Latest Past Events

RDI World Health Assembly Side Event

La Pastorale, Geneva 106 Route de Ferney, Geneva

Rare Diseases International and partners will hold a side event alongside the World Health Assembly in Geneva, Switzerland on Wednesday, 21 May 2025 at La Pastorale from 6-8:30 PM. This […]

MENA Congress for Rare Diseases 2025

Beach Rotana, Abu Dhabi, United Arab Emirates

MENA Congress for Rare Diseases 2025 will take place in Abu Dhabi from 17 to 20 April 2025. It will be the largest event for rare diseases with more than […]