LA ALIANZA MUNDIAL DE PERSONAS QUE VIVEN CON UNA ENFERMEDAD RARA

RDI ES UNA VOZ FUERTE PARA LAS PERSONAS QUE VIVEN CON UNA ENFERMEDAD RARA Y SUS FAMILIAS EN TODO EL MUNDO.

nuestras prioridades

Resolución de la ONU sobre las personas que viven con una enfermedad rara

Cobertura sanitaria universal

Red mundial de colaboración para las enfermedades raras

hitos

RARE DISEASES INTERNATIONAL RARE DISEASES INTERNATIONAL
FIRST UN POLICY EVENT FIRST UN POLICY EVENT
UHC INCLUDES RARE DISEASES UHC INCLUDES RARE DISEASES
AGREEMENT WITH WHO AGREEMENT WITH WHO
UN RESOLUTION UN RESOLUTION
GLOBAL ADVOCACY CAMPAIGN GLOBAL ADVOCACY CAMPAIGN

RARE DISEASES INTERNATIONAL

2015

RDI is initiated by EURORDIS and Rare Disease National Alliances for the USA, Canada, Japan, Australia and Russia. Read More

FIRST UN POLICY EVENT

2019

RDI co-hosts the first Rare Disease Day Policy Event at the United Nations.

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UHC INCLUDES RARE DISEASES

2019

Rare Diseases are included  in the UN Political Declaration on Universal Health Coverage

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AGREEMENT WITH WHO

2019

WHO and RDI sign a Memorandum of Understanding for future collaboration

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UN RESOLUTION

2021

The UN adopts the first-ever UN Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families.”

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GLOBAL ADVOCACY CAMPAIGN

2021

Families and rare diseases organisations around the world lead a global advocacy campaign calling for the adoption of a Un Resolution in 2021

Advocacy Toolkit

EVENTOS DE RDI

Inscríbase - Evento paralelo informal de Rare Diseases International a la 75ª Asamblea Mundial de la Salud
Evento paralelo informal de Rare Diseases International a la 75ª Asamblea Mundial de la Salud
REGISTRO
Evento del Día de las Enfermedades Raras 2022
VER

EVENTOS globales

Hoy

MEDIOS DE COMUNICACIÓN SOCIAL