ENGAGE
&
CONNECT

RESOURCES TO CONNECT GLOBALLY AND ACT LOCALLY.

LEARNING PATHS

choose your journey

FOLLOW THREE PATHS –  FIND RESOURCES AND TOOLS. CONNECT AND ENGAGE WITH A GLOBAL COMMUNITY.

events & FELLOWSHIPS

  • fellowships

    RDI offers travel and accommodation fellowships to enable patient advocates to participate in rare disease events around the world. RDI Members are given priority.

  • RDI MEMBER-LED DISCUSSIONS

    Small group discussions on issues of interest to the global rare disease community. Hosted by RDI members.

  • GLOBAL EVENTS

    An up-to-date calendar of rare disease events around the world. Add your event to the calendar!

FELLOWSHIPS

RDI OFFERS TRAVEL AND ACCOMMODATION FELLOWSHIPS TO ENABLE PATIENT ADVOCATES TO ATTEND EVENTS AROUND THE WORLD. 

CURRENT CALLS

CLOSED CALLS

rdi member-led discussionS

SMALL GROUP DISCUSSIONS ON TOPICS OF INTEREST TO THE GLOBAL RARE DISEASE COMMUNITY. HOSTED BY RDI MEMBERS.

join the next dicussion!

Meeting - “Advocating for a National Plan - hosted by Rare Voices Australia”

Meeting - “Start a Patient Registry - hosted bu the NCBRS Worldwide Foundation"

Workshop 1 - “Introduction to gene therapy, gene editing and cell therapy”

Workshop 2 - “the science behind genome editing and its social implications”

Workshop 3 - “Lentiviral Cellular and Gene Therapy. Global Access?"

GLOBAL EVENTS

AN UP-TO-DATE CALENDAR OF RARE DISEASE EVENTS AROUND THE WORLD. ADD YOUR EVENT TO THE CALENDAR!