ENGAGE
&
CONNECT
RESOURCES TO CONNECT GLOBALLY AND ACT LOCALLY.
LEARNING PATHS
choose your journey
FOLLOW THREE PATHS – FIND RESOURCES AND TOOLS. CONNECT AND ENGAGE WITH A GLOBAL COMMUNITY.
Mapping RAre: A World of ADvocacy WEbinar
events & FELLOWSHIPS
FELLOWSHIPS
RDI OFFERS TRAVEL AND ACCOMMODATION FELLOWSHIPS TO ENABLE PATIENT ADVOCATES TO ATTEND EVENTS AROUND THE WORLD.
CURRENT CALLS
CLOSED CALLS
- World Orphan Drug Congress - Barcelona, 29 October - 2 November 2023
- World Orphan Drug Congress - USA, 23 - 25 May 2023
- RE(ACT) Congress – International Congress of Research on Rare and Orphan Diseases, 15 -18 March 2023
- World Orphan Drug Congress - Europe, 30 October - 2 November 2023
rdi member-led discussionS
SMALL GROUP DISCUSSIONS ON TOPICS OF INTEREST TO THE GLOBAL RARE DISEASE COMMUNITY. HOSTED BY RDI MEMBERS.
join the next dicussion!
Meeting - “Advocating for a National Plan - hosted by Rare Voices Australia”
Meeting - “Start a Patient Registry - hosted by the NCBRS Worldwide Foundation"
Workshop 1 - “Introduction to gene therapy, gene editing and cell therapy”
Workshop 2 - “the science behind genome editing and its social implications”
Workshop 3 - “Lentiviral Cellular and Gene Therapy. Global Access?"
GLOBAL EVENTS
AN UP-TO-DATE CALENDAR OF RARE DISEASE EVENTS AROUND THE WORLD. ADD YOUR EVENT TO THE CALENDAR!
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October 16 @ 8:00 am - October 17 @ 5:00 pm
Congress on Rare Diseases for Latin America and the Caribbean
October 21 @ 1:00 pm - October 22 @ 5:00 pm
RDI Membership Meeting
Other Free Resource Platforms