RESOURCES TO CONNECT GLOBALLY AND ACT LOCALLY.
FOLLOW THREE PATHS – FIND RESOURCES AND TOOLS. CONNECT AND ENGAGE WITH A GLOBAL COMMUNITY.
RDI OFFERS TRAVEL AND ACCOMMODATION FELLOWSHIPS TO ENABLE PATIENT ADVOCATES TO ATTEND EVENTS AROUND THE WORLD.
SMALL GROUP DISCUSSIONS ON TOPICS OF INTEREST TO THE GLOBAL RARE DISEASE COMMUNITY. HOSTED BY RDI MEMBERS.
Meeting - “Advocating for a National Plan - hosted by Rare Voices Australia”
Meeting - “Start a Patient Registry - hosted by the NCBRS Worldwide Foundation"
Workshop 1 - “Introduction to gene therapy, gene editing and cell therapy”
Workshop 2 - “the science behind genome editing and its social implications”
Workshop 3 - “Lentiviral Cellular and Gene Therapy. Global Access?"
AN UP-TO-DATE CALENDAR OF RARE DISEASE EVENTS AROUND THE WORLD. ADD YOUR EVENT TO THE CALENDAR!
Join us for a webinar co-hosted by ALIBER, Casa Hunter and ERCAL to learn how we can work together to ensure that the WHA Resolution has real impact for Persons […]
Rare Diseases International and partners will hold a side event alongside the World Health Assembly in Geneva, Switzerland on Wednesday, 21 May 2025 at La Pastorale from 6-8:30 PM. This […]
MENA Congress for Rare Diseases 2025 will take place in Abu Dhabi from 17 to 20 April 2025. It will be the largest event for rare diseases with more than […]
