RESOURCES TO CONNECT GLOBALLY AND ACT LOCALLY.
FOLLOW THREE PATHS – FIND RESOURCES AND TOOLS. CONNECT AND ENGAGE WITH A GLOBAL COMMUNITY.
RDI OFFERS TRAVEL AND ACCOMMODATION FELLOWSHIPS TO ENABLE PATIENT ADVOCATES TO ATTEND EVENTS AROUND THE WORLD.
SMALL GROUP DISCUSSIONS ON TOPICS OF INTEREST TO THE GLOBAL RARE DISEASE COMMUNITY. HOSTED BY RDI MEMBERS.
Meeting - “Advocating for a National Plan - hosted by Rare Voices Australia”
Meeting - “Start a Patient Registry - hosted by the NCBRS Worldwide Foundation"
Workshop 1 - “Introduction to gene therapy, gene editing and cell therapy”
Workshop 2 - “the science behind genome editing and its social implications”
Workshop 3 - “Lentiviral Cellular and Gene Therapy. Global Access?"
AN UP-TO-DATE CALENDAR OF RARE DISEASE EVENTS AROUND THE WORLD. ADD YOUR EVENT TO THE CALENDAR!