L’ALLIANCE MONDIALE DES PERSONNES VIVANT AVEC UNE MALADIE RARE

LE RDI EST UNE VOIX FORTE POUR LES PERSONNES VIVANT AVEC UNE MALADIE RARE ET LEURS FAMILLESONUMONDE ENTIER.

Nos Priorités


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RARE DISEASES INTERNATIONAL RARE DISEASES INTERNATIONAL
FIRST UN POLICY EVENT FIRST UN POLICY EVENT
UHC INCLUDES RARE DISEASES UHC INCLUDES RARE DISEASES
AGREEMENT WITH WHO AGREEMENT WITH WHO
UN RESOLUTION UN RESOLUTION
GLOBAL ADVOCACY CAMPAIGN GLOBAL ADVOCACY CAMPAIGN

RARE DISEASES INTERNATIONAL

2015

RDI is initiated by EURORDIS and Rare Disease National Alliances for the USA, Canada, Japan, Australia and Russia. Read More

FIRST UN POLICY EVENT

2019

RDI co-hosts the first Rare Disease Day Policy Event at the United Nations.

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UHC INCLUDES RARE DISEASES

2019

Rare Diseases are included  in the UN Political Declaration on Universal Health Coverage

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AGREEMENT WITH WHO

2019

WHO and RDI sign a Memorandum of Understanding for future collaboration

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UN RESOLUTION

2021

The UN adopts the first-ever UN Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families.”

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GLOBAL ADVOCACY CAMPAIGN

2021

Families and rare diseases organisations around the world lead a global advocacy campaign calling for the adoption of a Un Resolution in 2021

Advocacy Toolkit

EVENEMENTS RDI


S'inscrire - Événement informel parallèle à la 75e Assemblée mondiale de la santé organisé par Rare Diseases International
Événement informel organisé parRare Diseases Internationalen marge de la 75e Assemblée mondiale de la santé

événements mondiaux


MÉDIAS SOCIAUX