advocate

TOOLS AND RESOURCES TO ADVOCATE FOR POLICY CHANGE ACROSS THE GLOBE AS WELL AS REGIONALLY, NATIONALLY AND LOCALLY.

AVOCATE GLOBALLY

REACH OUT TO POLICYMAKERS, FIND SOCIAL MEDIA GRAPHICS AND LEARN MORE ABOUT RARE DISEASES AND INTERNATIONAL POLICY.

MORE TOOLS AND RESOURCES TO SUPPORT INTERNATIONAL ADVOCACY AND POLICY DEVELOPED.

FIND RARE DISEASE NATIONAL FRAMEWORKS AND DEFINITIONS AROUND THE WORLD.

TITLE	DESCRIPTION	LANGUAGE
Health for All Advocacy Toolkit	Provides national-level civil society organizations and health networks with the necessary resources to kick-start advocacy initiatives on universal health coverage (UHC).	English, French, Spanish
#ACT4RARE - UN Resolution Toolkit	Toolkit to call for action on the commitments made by all UN Members States in the groundbreaking UN Resolution	English, French, Spanish
Online Training - International Advocacy for Rare Diseases	Know what the most important institutions and initiatives for international advocacy.	English
Advocacy Field-book - Make Your Voice Heard	Provides theory, guidelines, and tools to help you and your group advocate for a particular issue and get your voice heard.	English
E-Learning Course on Health Financing Policy for Universal Health Coverage	E-learning course comprised of six modules which cover the core functions of health financial policy as conceptualised by WHO.	English, French
E-Learning Course on Advocacy for Universal Health Coverage	E-Learning course on universal health coverage advocacy offers bitesize online modules to learn about the essence of UHC2030 Advocacy Guide.	English

TOOLS, RESOURCES AND ARTICLES TO ADVOCATE FOR NATIONAL PLANS AND STRATEGIES.

SOURCE	COUNTRY	TITLE & DESCRIPTION
ICORD	Global	Position Paper - The need for worldwide policy and action plans for rare diseases
EURORDIS	Europe	An overview of European national plans
Rare Voices Australia	Australia	A summary of the stakeholder consultation process involved in developing the National Strategic Action Plan for Rare Diseases
Government of Canada	Canada	Review - Building a National Strategy for Drugs for Rare Diseases: What We Heard from Canadians
Government of Mexico	Mexico	Overview of the process Towards a National Plan for Rare Diseases. Includes description and video of the virtual forum to discuss the development of a Rare Disease National Plan in Mexico.
Orphanet Journal of Rare Diseases	Global	Review of 11 national policies for rare diseases in the context of key patient needs
Orphanet Journal of Rare Diseases	The Americas (AMR)	Article - A civil society view of rare disease public policy in six Latin American countries
Salud Colectiva Journal	Brazil	Article - New problems of a new health system: the creation of a national public policy of rare diseases care in Brazil (1990s-2010s)