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Rare Diseases International

  • About RDI
    • Life with a Rare Disease
    • Vision & Mission
    • Activity Reports & Milestones
    • RDI Members
    • RDI Council – Governance
    • Our Team
    • Committees
    • Strategic Partners
    • Funding
  • Advocacy
    • International Advocacy
      • UN Resolution on PLWRD
      • Universal Health Coverage
      • Inclusion & Human Rights
    • Position Papers
    • Policy Events
  • Engagement
    • RDI Strategic Engagement
      • RDI Engage & Connect
    • Rare Disease Day
    • Meet the Patient Advocates
  • Global Initiatives
    • Health Equity & Access
      • MoU with WHO
      • Definition of Rare Diseases
      • Global Network for Rare Diseases
      • Access Working Group
    • Diagnosis
      • Global Diagnosis Survey
      • Global Commission
      • Genomic Technologies
    • Monitoring & Dissemination
      • Global State of the Art Resource
  • Get Involved
    • RDI Engage & Connect
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    • RDI Annual Meetings
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    • Contact RDI
    • Donate
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  • English
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Position Papers

UN Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families”, 16 December 2021

RDI Equity Statement

RDI UHC Day Statement on Health Equity, 13 December 2021

RDI Statement on COVID-19: Response and Recovery, July 2020

Spanish (translated by Fenpof Chile)

Rare Diseases: Leaving no one behind in Universal Health Coverage, APRIL 2021

Hebrew

RDI Joint Declaration – Rare Diseases: An International Public Health Priority

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