• statement of COVID-19
    Read the global rare disease community's statement on COVID-19 responses and recovery


Rare Diseases International is the global alliance of people living with a rare disease of all nationalities across all rare diseases.

RDI’s mission is to be a strong common voice for rare disease patients and families around the world.

The global rare disease alliance advocates for rare diseases as an international public health priority, represents its members on international platforms and enhance their capacities.

RDI brings together national and regional rare disease patient alliances from around the world as well as international rare disease-specific federations to create the global alliance of rare disease patients and families.

RDI has more than 60 member organisations from over 40 countries, that in turn represent rare disease patient groups in more than 100 countries worldwide.