• New Materials in UN Resolution Toolkit


The global alliance of Persons Living with a Rare Disease and Families across the globe.

RDI is a strong common voice for Persons Living with a Rare Disease and families around the world and across all rare diseases.

We advocate to make rare diseases an international policy priority, represent our members on international platforms, and help patient organisations build their capacity to act locally, regionally and globally.

RDI brings together over 80 organisations representing rare disease patient groups active in over 100 countries worldwide


A Journey through Life with a Rare Disease – Download the infographic