THE GLOBAL ALLIANCE OF PERSONS LIVING WITH A RARE DISEASE RDI IS A STRONG VOICE FOR PERSONS LIVING WITH A RARE DISEASE AND THEIR FAMILIES AROUND THE WORLD. LATEST NEWS The Philippines joins egypt, Spain, france, qatar, malaysia, panama and chile in co-sponsoring wha resolution Read the October 2024 Newsletter from Rare Diseases International RDI hosts side event at World Health Summit in Berlin Read the September 2024 Newsletter from Rare Diseases International P4H and RDI announce collaboration to support innovation in health and social protection for Persons Living with a Rare Disease Panama Joins Egypt, France, Spain, Qatar and Malaysia in co-sponsoring WHA Resolution France joins Egypt, Qatar, Spain and Malaysia in co-sponsoring WHA resolution Read the August 2024 Newsletter from Rare Diseases International our priorities World Health Assembly Resolution on Rare Diseases Universal Health Coverage Global Network for Rare Diseases Become a member JOIN RDI RDI MEMBERS milestones RARE DISEASES INTERNATIONAL FIRST UN POLICY EVENT UHC INCLUDES RARE DISEASES AGREEMENT WITH WHO UN RESOLUTION GLOBAL ADVOCACY CAMPAIGN UN Political Declaration on UHC RDI Awarded Special Consultative Status with ECOSOC RARE DISEASES INTERNATIONAL 2015 RDI is initiated by EURORDIS and Rare Disease National Alliances for the USA, Canada, Japan, Australia and Russia. Read More FIRST UN POLICY EVENT 2019 RDI co-hosts the first Rare Disease Day Policy Event at the United Nations. Read More UHC INCLUDES RARE DISEASES 2019 Rare Diseases are included in the UN Political Declaration on Universal Health Coverage Read More AGREEMENT WITH WHO 2019 WHO and RDI sign a Memorandum of Understanding for future collaboration Read More UN RESOLUTION 2021 The UN adopts the first-ever UN Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families.” Read More GLOBAL ADVOCACY CAMPAIGN 2021 Families and rare diseases organisations around the world lead a global advocacy campaign calling for the adoption of a Un Resolution in 2021 Advocacy Toolkit UN Political Declaration on UHC 2023 The UN adopt a new Political Declaration on “UHC expanding our ambition for health and well-being in a post-COVID world” with Rare Diseases included Read More RDI Awarded Special Consultative Status with ECOSOC 2024 RDI is granted special consultative status with the United Nations Economic and Social Council (ECOSOC) Read more EVENTS Loading view. Today Upcoming Upcoming Select date. Apr 17 April 17, 2025 - April 20, 2025 MENA Congress for Rare Diseases 2025 Previous Events Today Next Events Subscribe to calendar Google Calendar iCalendar Outlook 365 Outlook Live Export .ics file Export Outlook .ics file toolkits & Resources Toolkit on the UN Resolution on Persons Living with a Rare DIsease #ACT4RARE Toolkit on Universal Health Coverage for Persons Living with a Rare Disease #UHC4RARE articles & papers global network expert series Follow #GN4RARE on RDI social media to read monthly discussions with the Panel of Experts, the diverse multistakeholder group supporting the development of the Global Network for Rare Diseases. READ