THE GLOBAL ALLIANCE OF PERSONS LIVING WITH A RARE DISEASE

photo of RDI members with RDI banner

LATEST NEWS

our strategic goals


Enhance the Capacity and Engagement of the Rare Disease Community

Prioritization of Rare Disease in Policy
Financing for Adequate and Sustainable Resources for Rare Disease Care

Improve Access to Treatment and Care for Persons Living with a Rare Disease

EVENTS


Latest Past Events

Mapping Rare Webinar

In celebration of Rare Disease Day 2026, join us for a global event highlighting achievements from our global community! In this special webinar, RDI will spotlight inspiring Mapping Rare projects […]

RDI World Health Assembly Side Event

La Pastorale, Geneva 106 Route de Ferney, Geneva

Rare Diseases International and partners will hold a side event alongside the World Health Assembly in Geneva, Switzerland on Wednesday, 21 May 2025 at La Pastorale from 6-8:30 PM. This […]