LATEST NEWS
our strategic goals
Enhance the Capacity and Engagement of the Rare Disease Community
Prioritization of Rare Disease in Policy
Financing for Adequate and Sustainable Resources for Rare Disease Care
Improve Access to Treatment and Care for Persons Living with a Rare Disease
EVENTS
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- There are no upcoming events.
Latest Past Events
From Policy to Impact: Advancing Universal Health Coverage Through Action on Rare Diseases
NH Colletion Madison Avenue, 22 E 38th Street, New York City, NY 22 E 38th Street, New York CityHeld alongside the 81st United Nations General Assembly and in the lead-up to the High-Level Meeting on Universal Health Coverage, this event will bring together a small group of global […]
RDI Membership Meeting: Nairobi, Kenya
Novotel Nairobi Westlands NairobiRDI's 2026 annual membership meeting will take place in person in Nairobi, Kenya from 30 June - 2 July 2026. It will be co-hosted by Rare Disorders Kenya. This event […]
Financing Rare Diseases: Innovative Models Reshaping Access to Diagnosis, Treatment and Care
Scientific and medical advances in rare diseases continue to accelerate — but equitable access to diagnosis, treatment, and care remains out of reach for millions of people living with a […]