LATEST NEWS
our strategic goals
Enhance the Capacity and Engagement of the Rare Disease Community
Prioritization of Rare Disease in Policy
Financing for Adequate and Sustainable Resources for Rare Disease Care
Improve Access to Treatment and Care for Persons Living with a Rare Disease
EVENTS
- There are no upcoming events.
- There are no upcoming events.
Latest Past Events
RDI Membership Meeting: Nairobi, Kenya
Novotel Nairobi Westlands NairobiRDI's 2026 annual membership meeting will take place in person in Nairobi, Kenya from 30 June - 2 July 2026. It will be co-hosted by Rare Disorders Kenya. This event […]
Financing Rare Diseases: Innovative Models Reshaping Access to Diagnosis, Treatment and Care
Scientific and medical advances in rare diseases continue to accelerate — but equitable access to diagnosis, treatment, and care remains out of reach for millions of people living with a […]
WHA 79 Side Event – Rare Diseases: a Catalyst for Global Health Transformation
Geneva Graduate Institute GenevaRare diseases expose the stress points of our health systems, revealing gaps in diagnosis, care coordination, innovation, data, financing, and access. More importantly, they offer a powerful opportunity: If health […]