RDI is the global alliance of Persons Living with a Rare Disease and their families across all countries and across all rare diseases.
Throughout a lifetime, Persons Living with a Rare Disease (PLWRD) and their families face multiple forms of social discrimination, as well as common challenges in accessing diagnosis and care.
As an alliance, RDI works to ensure greater equity for all Persons Living with a Rare Disease and their families across the globe.
RDI brings together national and regional rare disease patient organizations as well as international federations for specific diseases and multi-stakeholder groups.
OUR VISION
A world where Persons Living with a Rare Disease and their families experience a better life through full recognition and support.
OUR MISSION
To be a strong common voice for Persons Living with a Rare Disease and their families around the world.
OUR OBJECTIVES
- To ADVOCATE for rare diseases as an international policy priority
- To REPRESENT Persons Living with a Rare Disease and their families at international institutions and platforms
- To SUPPORT the empowerment of RDI members through knowledge exchange, networking, mutual support and joint actions
OUR IMPACT STRATEGY
Text-only version of Our Impact Strategy
