VISION & MISSION

Rare Diseases International, RDI, is the global alliance of Persons Living with a Rare Disease and families across the globe.

TFE3-associated neurodevelopmental disorder – France

Throughout a lifetime, Persons Living with a Rare Disease and their families confront shared challenges accessing care and multiple forms of social discrimination. As an alliance, RDI works for greater equity for all Persons Living with a Rare Disease and families across the globe.

RDI brings together national and regional rare disease patient organisations as well as international federations and multi-stakeholder groups to achieve greater equity for the global community of Persons Living with a Rare Disease

VISION

A world where Persons Living with a Rare Disease and their families experience a better life through full recognition and support, as well as equitable access to health and social care.

MISSION

A strong common voice for Persons Living with a Rare Disease and their families around the world.

OBJECTIVES

  • To ADVOCATE for rare diseases as an international policy priority through awareness-raising, policy promotion and international collaborations
  • To REPRESENT Persons Living with a Rare Disease and their families at international institutions and platforms
  • To SUPPORT the empowerment of RDI members through knowledge exchange, networking, mutual support and joint actions