10 February 2025 marked an important turning point for the World Health Assembly (WHA) Resolution on Rare Diseases and the global rare disease community. The #Resolution4Rare has been officially recommended for adoption at the 78th WHA by the 156th WHO Executive Board.
RDI applauds the decision of the 156th WHO Executive Board (EB) to recommend the adoption of the Resolution on Rare Diseases to the 78th World Health Assembly (WHA) in May 2025. This marks a significant milestone in the global effort to improve the lives of over 300 million persons living with a rare disease (PLWRD) worldwide.
RDI would like to express its gratitude to the Arab Republic of Egypt and Spain for their leadership, and to all co-sponsoring Member States — Brazil, Chile, China, Ecuador, France, Greece, India, Iraq, Jordan, Kuwait, Luxembourg, Malaysia, Pakistan, Palestine, Panama, Philippines, Qatar, Romania, Russia, Slovakia, Slovenia, Somalia, Thailand, and Vanuatu.
RDI also extends its gratitude to the WHO for advancing this resolution, and to the over 200 members of the Coalition and the global rare disease community for their support.
This decision marks the first important milestone towards securing the adoption of the WHA Resolution on Rare Diseases and the Global Action Plan (GAP) at the 78th WHA.
RDI urges all WHA Member States to continue their commitment and collaboration to ensure the successful adoption and implementation of the resolution and the GAP.