RDI Launches Youth leadership programme

RDI is pleased to announce the launch of the RDI Youth Leadership Programme, an initiative designed to engage and empower young people within the rare disease community. This programme aims to ensure that the perspectives of young leaders are actively represented in global discussions and decision-making processes that shape the future of rare diseases.

Through this programme, participants will:

-Contribute their unique insights and expertise to the rare disease ecosystem

-Build essential leadership skills through capacity-building opportunities

-Foster collaboration across the global rare disease community

By empowering the next generation of advocates, the programme ensures that RDI aligns with the needs and expectations of the next generation and remains relevant in a rapidly evolving world.

Applications Now Open!

Deadline: January 31, 2025

Apply Here

Read the Terms of Reference

If you have any questions about the Programme or if are experiencing any difficulties with your application, please contact gaia.esposito@rarediseasesint.org

The state of palestine and Kuwait join egypt, spain, france, qatar, malaysia, panama, chile, and the philippines in co-sponsoring wha resolution

The State of Palestine and Kuwait have announced that they will co-sponsor the WHA Resolution on Rare Diseases at the WHA 2025 alongside Egypt, Qatar, Spain, Malaysia, France, Panama, Chile, and the Philippines.

Momentum continues to grow behind this initiative to improve the lives of Persons Living with a Rare Disease through global action. We applaud both the State of Palestine and Kuwait for affirming the need to make rare diseases a global health priority and ensure that no one is left behind.

Read the November 2024 Newsletter from Rare Diseases International

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