RDI Youth Leadership Programme

The RDI Youth Leadership Programme is designed to engage and empower young people within the rare disease community, ensuring their perspectives are represented in global discussions and decision-making processes. It provides a platform for young leaders to contribute their insights and expertise while fostering capacity-building and collaboration across the rare disease ecosystem.

Programme objectives

• Empower young leaders in the rare disease community through mentoring, capacity building and training opportunities
• Promote innovation by integrating fresh perspectives into the rare disease agenda, enhancing RDI’s relevance in a rapidly evolving world
• Strengthen collaboration among young advocates, fostering an inclusive and dynamic network within the rare disease ecosystem
• Facilitate participation of young advocates in global forums and events

Programme Pillars

Meet our 2025 Youth Leaders

The RDI Youth Programme is sponsored by Fondation Ipsen, under the aegis of Fondation de France