Rare Diseases International alongside the member organization Federación Española de Enfermedades Raras (FEDER), applauds Spain for joining the Arab Republic of Egypt and the State of Qatar in sponsoring a Resolution on Rare Diseases at the World Health Assembly 2025:
« Rare Diseases: A Priority for Global Health Equity and Inclusion. »
With 300 million people globally living with rare diseases facing ongoing challenges such as delayed diagnosis, limited access to treatment, and financial burdens, RDI underscores the need for collective and multisectoral action to prioritize rare diseases within global health. The WHA resolution aims to establish a comprehensive global framework to address these challenges by raising awareness, improving diagnosis, enhancing access to care, and fostering research and development of therapies.
Find the the joint Press Note in English here
Find the joint Press Note in Spanish here
Find FEDER’s annoucement here
We are honored to announce that Dr. Mónica García Gómez, the Minister of Health, will be joining us at our upcoming public webinar on 30 August.
RDI calls upon Member States to join Spain, Egypt and Qatar in cosponsoring this initiative.