On 23 January 2025 the 131 members of the Coalition in Support of the WHA Resolution on Rare Diseases, published an open letter to Dr. Tedros Adhanom Ghebreyesus, Director-General of the WHO, emphasizing the need for a Global Action Plan on Rare Diseases. This plan is critical to ensuring sustainable solutions, greater equity for persons living with a rare disease and making Universal Health Coverage a reality.
The Coalition urges WHO to take key actions:
· Dedicate resources to develop the Global Action Plan.
· Support Member States in adopting and implementing the Resolution.
· Engage PLWRD and their advocates in the process.
· Foster international collaboration.
The Coalition remains committed to collaborating with WHO and Member States to advance this agenda.
Read the full open letter.
