Author: RDI

The Resolution on Rare Diseases was officially adopted at the 78th World Health Assembly (WHA78) on 24 May, 2025.

This is a milestone moment for the global rare disease community. The adoption of this Resolution by WHO Member States marks a powerful step forward in ensuring equity, visibility, and inclusion for the 300 million people living with a rare disease around the world.

At Rare Diseases International, we are beyond excited and proud to have contributed to this incredible achievement — a true testament to the strength of collective advocacy and international cooperation. We thank the the 41 Member States who co-sponsored the Resolution — with special acknowledgment to the leadership of Egypt and Spain, who played a key role in driving this initiative forward — and to the 275 civil society organizations who rallied behind this call. Your leadership and support have made history.

Let’s continue working together to turn this Resolution into real action at national and regional levels.

Find out more information at the following link about the WHA Coalition’s announcement on the adoption of the Resolution.