Today marks an important turning point for the WHA Resolution on Rare Diseases and the global rare disease community. The #Resolution4Rare has been formally submitted for consideration by the Executive Board.
The draft resolution can be read here.
The official submission follows 3 months of intense negotiations by the Member States to agree on the final text to submit.
This represents two major milestones:
- 21 Member States from across all regions of the world have agreed to co-sponsor the Resolution: the Arab Republic of Egypt, Spain, Brazil, Chile, China, Ecuador, France, Iraq, Jordan, Kuwait, Luxembourg, Malaysia, Panama, Palestine, Pakistan, Philippines, Qatar, Romania, Somalia, Vanuatu and India
- Over 180 organizations came together from across the globe to form a Coalition in support of the Resolution
In the words of RDI’s CEO Alexandra Heumber Perry: “This is a critical moment for the rare disease community worldwide. The formal submission of the Resolution reflects the growing global commitment to addressing the needs of people living with a rare disease. We commend the Member States for their leadership and the rare disease community for their unwavering advocacy.”