EURORDIS-Rare Diseases Europe has recently signed an agreement with the Rare Disease Foundation of Iran, a non-profit and non-governmental institution that provides services for rare disease patients and their community in Iran.
Created in 2008, RADOIR was established by an entrepreneur, M. Ali Davoudian, and medical professionals who care for patients with rare disorders. The foundation aims to improve the quality of life for patients living with a rare disease and to increase public awareness about the burden of rare diseases on patients, their families and the community.
EURORDIS and RADOIR share the common vision that bringing together rare disease patient communities from around the world catalyses international collaboration of all stakeholders. They recently signed a Memorandum of Understanding, which is part of the continued effort to stress the international dimension of the rare disease movement and the global benefits to be gained by international collaboration in this field. Read more about EURORDIS international partnerships.
RADOIR also became a member of RDI at the end of October, right in time for the launch of the NGO Committee for Rare Diseases, where they intend to play a role due to having consultative status with the United Nations Economic and Social Council.
Solidarity with the Middle East regarding the interests of rare disease patients is required to leverage the efforts of those fighting to promote the cause of rare diseases in the region.