The aim of the International Human Gene Therapy Conference is to bring together all the key stakeholders interested in genetics and gene therapy to share and discuss advances and developments in these fields. Therefore we aimed at assisting academicians, business executives, researchers, scientists, manufacturers, gene therapy companies, communities, and agencies to keep on new developments […]
Burgos, España. Del 27 al 30 de septiembre de 2022. El programa contempla conferencias, talleres y mesas redondas, y será un lugar de encuentro entre las asociaciones de pacientes de los THTC en Latinoamérica y España. Lema: Tejiendo redes. hashtag: #THTC2022 web: https://conectiva.lat/evento/THTC2022
As part of WHO ICD-11 webinar series, the Classifications and Terminologies Unit in collaboration with the Healthier Populations Division at WHO and Rare Diseases International is organising an ICD-11 webinar that will be held on September 27th, 2022. ONLINE. An Event co-organised by the WHO and Rare Diseases International.
The webinar will consider some market characteristics (e.g. information asymmetry and market power) common in different sectors, with a view to exploring thoughts about the roles of governments in managing the transparency of pharmaceutical prices.
Join us for a UHC Day campaign kick-off call on 29 September at 9 a.m. ET, where we will reveal this year’s UHC Day theme, share opportunities to engage with this year’s campaign, and discuss exciting new #HealthForAll partnerships.
There are multiple barriers to rare disease diagnosis, including access to testing technologies, availability of knowledgeable health care providers, and lack of uniformity of the phenotype for a given genotype or disease-causing agent. These barriers significantly lengthen the time between detection of a rare disease and its diagnosis, aptly called the diagnostic odyssey. The collection […]
The RNDS was created to bring together individuals diagnosed with rare neuroimmune disorders and clinicians and researchers that focus on these disorders. This event is the only one of its kind. On October 7 – 9, 2022, the RNDS will host a hybrid event—participants can choose to attend either in-person, virtually via online streaming, or […]
Drug Repurposing for Rare Diseases highlights the role that drug repurposing can play in lowering the cost and accelerating the development of rare disease treatments. An event unique in its collaborative and multi-stakeholder focus, we bring patient groups, researchers and industry professionals together to showcase excellent examples of rare repurposing.
IPOPI‘s National Member Organisations are all invited to the XVII Global Patients’ Meeting in Gothenburg, Sweden, 12-15 October 2022! Join us for an opportunity to finally meet up with the global PID community in person, and enjoy three days of educational sessions presenting the latest medical advances on primary immunodeficiencies, as well as fruitful discussions […]
The UN Resolution on Persons Living with a Rare Disease was adopted in December 2021. Now what? How can you use it? How can you tell you country's decision makers to act? Join us for a presentation of the #ACT4RARE Toolkit to raise awareness and call action in the UN Resolution. The #ACT4RARE toolkit will […]
WPA’s 1st World Patients Conference will provide patients the platform and opportunity to network, exchange information, share experiences, learn from each other, raise your voice, and advocate for patients cause internationally.
The International Federation for Spina Bifida and Hydrocephalus warmly INVITES persons with Spina Bifida and Hydrocephalus from all over the world as well as all interested parties to celebrate the 10th edition of the World Spina Bifida and Hydrocephalus Day (WSBHD) on the topic of “Elevate Your Voice” on October 25 2022. Various activities will […]
Annual Awareness Day on November 1st, to raise awareness for patients diagnosed with Acromegaly. The goal is to help people with this rare endocrine disease get the timely diagnosis and effective treatment they need and deserve.
