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X-WR-CALDESC:Events for Rare Diseases International
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DTSTART:20220327T010000
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DTSTART;VALUE=DATE:20221007
DTEND;VALUE=DATE:20221010
DTSTAMP:20260508T162751
CREATED:20220923T153052Z
LAST-MODIFIED:20220923T153611Z
UID:10000297-1665100800-1665359999@www.rarediseasesinternational.org
SUMMARY:2022 Rare Neuroimmune Disorders Symposium
DESCRIPTION:The RNDS was created to bring together individuals diagnosed with rare neuroimmune disorders and clinicians and researchers that focus on these disorders. This event is the only one of its kind. On October 7 – 9\, 2022\, the RNDS will host a hybrid event—participants can choose to attend either in-person\, virtually via online streaming\, or partly in-person and partly online. An online pre-RNDS will be hosted on September 9\, 2022\, to dive deeper into topics related to your rare neuroimmune disorder and start meeting others that will attend the RNDS in October. We remain committed to hosting a conference that empowers our rare disease community to become better advocates for themselves and provides valuable resources to keep learning about these rare conditions. For the online-only registration: https://hopin.com/events/2022-rnds. \n  \nOnline and In person
URL:https://www.rarediseasesinternational.org/event/rare-neuroimmune-disorders-symposium-2022/
CATEGORIES:Hosted by RDI Member
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20221010
DTEND;VALUE=DATE:20221011
DTSTAMP:20260508T162751
CREATED:20220228T124144Z
LAST-MODIFIED:20220721T130025Z
UID:10000170-1665360000-1665446399@www.rarediseasesinternational.org
SUMMARY:Drug Repurposing for Rare Diseases 2022
DESCRIPTION:Drug Repurposing for Rare Diseases highlights the role that drug repurposing can play in lowering the cost and accelerating the development of rare disease treatments. \nAn event unique in its collaborative and multi-stakeholder focus\, we bring patient groups\, researchers and industry professionals together to showcase excellent examples of rare repurposing.
URL:https://www.rarediseasesinternational.org/event/drug-repurposing-for-rare-diseases-2022/
LOCATION:America Square Conference Centre\, London\, 17\, One Crosswall\, America Square\,\, London\, EC3N 2LB\, United Kingdom
CATEGORIES:Hosted by RDI Member
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20221012
DTEND;VALUE=DATE:20221016
DTSTAMP:20260508T162751
CREATED:20220721T094439Z
LAST-MODIFIED:20220721T113906Z
UID:10000264-1665532800-1665878399@www.rarediseasesinternational.org
SUMMARY:IPOPI’s XVII Global Patients’ Meeting 2022 (In-Person)
DESCRIPTION:IPOPI‘s National Member Organisations are all invited to the XVII Global Patients’ Meeting in Gothenburg\, Sweden\, 12-15 October 2022! Join us for an opportunity to finally meet up with the global PID community in person\, and enjoy three days of educational sessions presenting the latest medical advances on primary immunodeficiencies\, as well as fruitful discussions and skills-building opportunities.
URL:https://www.rarediseasesinternational.org/event/ipopi-global-patients-meeting-2022-10-12/
LOCATION:Gothenburg\, Sweden
CATEGORIES:Hosted by RDI Member
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Helsinki:20221012T140000
DTEND;TZID=Europe/Helsinki:20221012T150000
DTSTAMP:20260508T162751
CREATED:20220922T161142Z
LAST-MODIFIED:20220922T161142Z
UID:10000294-1665583200-1665586800@www.rarediseasesinternational.org
SUMMARY:#ACT4RARE Toolkit - NEW UN Resolution Toolkit Launch (ONLINE)
DESCRIPTION:The UN Resolution on Persons Living with a Rare Disease was adopted in December 2021. Now what? How can you use it? How can you tell you country’s decision makers to act? \nJoin us for a presentation of the #ACT4RARE Toolkit to raise awareness and call action in the UN Resolution. \nThe #ACT4RARE toolkit will include :\n– A summary of the actions all countries have agreed to take\n– Template letters for policymakers\n– Social Media kit – with post images and GIFs\nAnd more !
URL:https://www.rarediseasesinternational.org/event/act4rar-toolkit-launch-2022-10-12/
CATEGORIES:Hosted by RDI
ATTACH;FMTTYPE=image/png:https://www.rarediseasesinternational.org/wp-content/uploads/2022/09/Website-Event-Image-17.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20221015
DTEND;VALUE=DATE:20221017
DTSTAMP:20260508T162751
CREATED:20220919T150550Z
LAST-MODIFIED:20220919T150550Z
UID:10000290-1665792000-1665964799@www.rarediseasesinternational.org
SUMMARY:The 1st World Patients Conference in Rome (Italy)
DESCRIPTION:WPA’s 1st World Patients Conference will provide patients the platform and opportunity to network\, exchange information\, share experiences\, learn from each other\, raise your voice\, and advocate for patients cause internationally.
URL:https://www.rarediseasesinternational.org/event/world-patients-conference-rome-2022-10/
LOCATION:Crowne Plaza Rome – St. Peter’s\, Italy
CATEGORIES:Hosted by RDI Member
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20221025
DTEND;VALUE=DATE:20221026
DTSTAMP:20260508T162751
CREATED:20220928T142118Z
LAST-MODIFIED:20220928T142118Z
UID:10000301-1666656000-1666742399@www.rarediseasesinternational.org
SUMMARY:World Spina Bifida and Hydrocephalus Day 2022
DESCRIPTION:The International Federation for Spina Bifida and Hydrocephalus warmly INVITES persons with Spina Bifida and Hydrocephalus from all over the world as well as all interested parties to celebrate the 10th edition of the World Spina Bifida and Hydrocephalus Day (WSBHD) on the topic of “Elevate Your Voice” on October 25 2022. Various activities will take place around the WSBHD22 throughout the month of October. All events\, materials\, information and latest updates are available on www.worldspinabifidahydrocephalusday.com
URL:https://www.rarediseasesinternational.org/event/world-spina-bifida-and-hydrocephalus-day-2022-10-25/
CATEGORIES:Hosted by RDI Member
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