Annual Awareness Day on November 1st, to raise awareness for patients diagnosed with Acromegaly. The goal is to help people with this rare endocrine disease get the timely diagnosis and effective treatment they need and deserve.
Taller previo a la conferencia 17 de noviembre de 2022 11:00-12:15 GMT-3 / 15:00-16:15 CET Virtual event → Haga clic aquí para participar : bit.ly/3O8nnVP (no es necesario registrarse antes) ¡Complete la encuesta antes del taller! → https://forms.gle/z9RL5vSeUftpdeAL7
For the first time, the World Duchenne Organization will team up with RaDiOrg Rare Diseases in Belgium and SMA Europe in Germany to form a wider network of approximately 160 Patient Organizations all interested in how the FAIR principles could make a difference in optimizing the use of patients’ data.