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3rd International FAIR data ‘visiting’ for Duchenne & Other Rare Diseases

November 22, 2022 @ 2:00 pm - 10:00 pm

For the first time, the World Duchenne Organization will team up with RaDiOrg Rare Diseases in Belgium and SMA Europe in Germany to form a wider network of approximately 160 Patient Organizations all interested in how the FAIR principles could make a difference in optimizing the use of patients’ data.