Dates: 21-25 October, 2024
Location: Barcelona, Spain
DAY 1: Monday, 21 October
Location: Hotel SB Plaza
13:30-14:00 Welcome/Registration
14:00-14:30 Session 1: Current RDI Activities
updates on RDI actions including the WHA Resolution
14:30-15:30 Session 2: Member Intros & Priorities
Each organization presents 1 slide with their current priorities and recent achievements/challenges
15:30-15:45 – Coffee break
15:45-17:30 Session 3: Meaningful Engagement with PLWRD: Building Stronger Connections
Interactive Discussion Session
DAY 2: Tuesday, 22 October
Location: Hotel SB Plaza
9:00-10:30 Multistakeholder Session (4a): Forward-Looking Approaches to Rare Diseases 2030
Interactive Workshop
10:30 – 10:45 Coffee Break
10:45-12:00 Multistakeholder Session (4b): Equity
Interactive Workshop
12:00-13:00 – Lunch with Members and Partners
13:00-14:00 – Session 5: TBC
14:00-14:45 – Session 6a: Finding Solutions through a Hackathon (Helen Cederroth, Wilhelm Foundation)
14:45-15:30 – Session 6b : Rare Disease Day (Stanislav Ostapenko, EURORDIS)
15:30 -16:00 Coffee Break
16:00-17:30 Breakout Discussions
Small group discussions
19:00-21:30 Aurora Awards Dinner (Members and Partners)
DAY 3: Wednesday, 23 October
Visit to Saint Joan de Déu Hospital
World Orphan Drug Congress
DAY 4: Thursday, 24 October
World Orphan Drug Congress
17:00: Patient Advocate Networking at RDI Booth (at WODC)
DAY 5: Friday, 25 October
15:00 Close of World Orphan Drug Congress