RDI Alliance of Companies

The RDI Alliance of Companies for Patient Centred Action fosters a long-term educational relationship between RDI and companies with products or services that have an impact on people living with a rare disease.

The Alliance of Companies is a platform for companies to support the rare disease cause internationally and to increase mutual understanding of issues that are important for rare disease patients and different industries. The Alliance aims to:

  1. Build an international, cross-sector network of companies working in areas that affect rare disease patients. Examples include pharmaceutical and biotechnology, medical equipment and devices, research, information technology, data mining and management, artificial intelligence, transport and logistics.
  2. Exchange perspectives on issues vital to rare disease patients.
  3. Stimulate companies across many industries to address patient needs.
  4. Provide financial support to advance RDI’s mission.

Companies joining the RDI Alliance of Companies make an annual contribution to be used at the discretion of RDI to advance our mission. In addition, the RDI Alliance of Companies sign a Code of Conduct and make a commitment to participate in at least two RDI meetings each year. Examples of events in 2019 include the open session of the RDI 5th Annual Meeting and RDI’s side event at the World Health Organization’s World Health Assembly: Universal Health Coverage – Including Rare Diseases to Leave No One Behind.

Virtual meetings for the RDI Alliance of Companies are held twice each year.

For more information on the RDI Alliance of Companies, please contact Jill Bonjean, Corporate Relations Advisor.


RDI Alliance of Companies members


Download RDI Alliance of Companies Code of Conduct

Download RDI Policy on Relationship with and Financial Support by Companies