Rare Diseases International (RDI)

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https://www.rarediseasesinternational.org/
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WHA 79 Side Event

WHA 79 Side Event – Rare Diseases: a Catalyst for Global Health Transformation

Geneva Graduate Institute Geneva, Switzerland

Rare diseases expose the stress points of our health systems, revealing gaps in diagnosis, care coordination, innovation, data, financing, and access. More importantly, they offer a powerful opportunity: If health systems are designed to deliver for rare diseases, they can deliver for everyone. During the 79th World Health Assembly, Rare Diseases International (RDI)  will host […]

Event Series Innovative Financing Webinar Series

Financing Rare Diseases: Innovative Models Reshaping Access to Diagnosis, Treatment and Care

Scientific and medical advances in rare diseases continue to accelerate — but equitable access to diagnosis, treatment, and care remains out of reach for millions of people living with a rare disease. This webinar offers a practical look at how innovative financing models can help close these gaps. The session will explore a range of […]

RDI Membership Meeting: Nairobi, Kenya

Novotel Nairobi Westlands Nairobi, Kenya

RDI's 2026 annual membership meeting will take place in person in Nairobi, Kenya from 30 June - 2 July 2026. It will be co-hosted by Rare Disorders Kenya. This event will bring our community together for an engaging programme, featuring: interactive workshops capacity building sessions the Aurora Awards the RDI Annual General Assembly (AGM)