Global Albinism Alliance : ISCA 2025

Join the Global Albinism Alliance at the 2025 International Scientific Conference on Albinism. The event  will be held virtually from January 21-25. If you would like to attend and haven't registered yet, you can register here. The deadline for registration is on 15 January. Learn more about the programme here.

3rd Brazilian Health Technology Assessment (HTA) Forum for Rare Diseases

Instituto Unidos Pela Vida will host the 3rd Brazilian Health Technology Assessment (HTA) Forum for Rare Diseases on February 12, from 9:00 AM to 5:00 PM, BRT. The event will take place at Blue Tree Premium Morumbi in São Paulo, Brazil, and will also be available online via the Congresse.me platform. The forum aims to […]

RDI PUBLIC WEBINAR: Rare Disease Expertise , Centers and Networks: Results of the Survey

Join us to for a public webinar presenting the results of the RDI's recent survey on rare diseases expertise. We will share key findings from the survey on rare disease expertise around the globe, including insights into care-providing centers, networks, and collaborations. If you would like to attend and haven't register yet, register here.