Unite Annual Summit 2022

On November 29 and 30, the Global Heart Hub is bringing together patient representatives from all over the world for the second Unite Annual Summit. (Free Virtual Event) Register : https://globalhearthub.org/unite-annual-summit/

UHC DAY 2022 – UNIVERSAL HEALTH COVERAGE FOR RARE DISEASES

On UHC Day 2022, we call for Universal Health Coverage (UHC) for rare diseases and identify the next steps towards making it a reality for the over 300 million Persons Living with a Rare Disease (PLWRD) worldwide. Expert speakers will present the main pillars of UHC for rare diseases, and bring regional examples of positive […]

Advocacy in Hemophilia 2022 series

Join the last series session on "Advocacy for Hemophilia" : "Crafting a Path that Leaves No One Behind : Ethical and realistic policy considerations for the future of hemophilia care" December 14, 2022, 10-11:30am ET Register for free : http://bit.ly/3VbjxgU