Public Webinar: Is Traditional Health Financing Leaving Rare Diseases Behind

How can innovative financing approaches improve equitable access to diagnosis, treatment, and care for people living with rare diseases? Join us for a new webinar series bringing together health economists, policymakers, patient advocates, and payers. Through a multistakeholder dialogue, this series will examine key financing gaps and barriers to access, map these challenges to relevant […]

Financing Rare Diseases: Innovative Models Reshaping Access to Diagnosis, Treatment and Care

Scientific and medical advances in rare diseases continue to accelerate — but equitable access to diagnosis, treatment, and care remains out of reach for millions of people living with a rare disease. This webinar offers a practical look at how innovative financing models can help close these gaps. The session will explore a range of […]

From Policy to Impact: Advancing Universal Health Coverage Through Action on Rare Diseases

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Held alongside the 81st United Nations General Assembly and in the lead-up to the High-Level Meeting on Universal Health Coverage, this event will bring together a small group of global health leaders, Member State representatives, Persons Living with a Rare Disease and advocates, as well as representatives from civil society, academia, philanthropy and the private […]