This year’s Rare Disease Day theme “More than You Can Imagine” reminds us of the milestones we have achieved by working together as a global community — most recently, in our collective efforts to advocate for a World Health Assembly Resolution on Rare Diseases. There is more power, dedication and commitment in our community than we ever […]
Join us for a webinar co-hosted by ALIBER, Casa Hunter and ERCAL to learn how we can work together to ensure that the WHA Resolution has real impact for Persons Living with a Rare Disease in Latin America and the Caribbean.
How can innovative financing approaches improve equitable access to diagnosis, treatment, and care for people living with rare diseases? Join us for a new webinar series bringing together health economists, policymakers, patient advocates, and payers. Through a multistakeholder dialogue, this series will examine key financing gaps and barriers to access, map these challenges to relevant […]