This webinar will be an opportunity to explain in more detail the background for the WHA Resolution on Rare Diseases, as well as the progress that has been made so far, the current status of the initiative, and next steps. It will also be an opportunity for members to ask questions and clarify anything about […]
Join us to for a public webinar presenting the results of the RDI's recent survey on rare diseases expertise. We will share key findings from the survey on rare disease expertise around the globe, including insights into care-providing centers, networks, and collaborations. If you would like to attend and haven't register yet, register here.
This year’s Rare Disease Day theme “More than You Can Imagine” reminds us of the milestones we have achieved by working together as a global community — most recently, in our collective efforts to advocate for a World Health Assembly Resolution on Rare Diseases. There is more power, dedication and commitment in our community than we ever […]