Help shape the WHO Global Action Plan on Rare Diseases! An important opportunity is coming up for the global rare disease community to help shape the World Health Organization (WHO) Global Action Plan on Rare Diseases. In the coming weeks, WHO is expected to publish a Discussion Paper that will serve as the basis for […]
Held alongside the 81st United Nations General Assembly and in the lead-up to the High-Level Meeting on Universal Health Coverage, this event will bring together a small group of global health leaders, Member State representatives, Persons Living with a Rare Disease and advocates, as well as representatives from civil society, academia, philanthropy and the private […]
RDI's 2026 annual membership meeting will take place in person in Nairobi, Kenya from 30 June - 2 July 2026. It will be co-hosted by Rare Disorders Kenya. This event will bring our community together for an engaging programme, featuring: interactive workshops capacity building sessions the Aurora Awards the RDI Annual General Assembly (AGM)
