RDI Side Event @ WHS2024: Why Prioritize Rare Diseases in Global Health Policy?

RDI will be hosting a side event “ Why Prioritize Rare Diseases in Global Health Policy” at the World Health Summit in Berlin from 13-15 October.

The overall objective of the event is to engage Ministries of Health, the WHO, World Bank, IFPMA representatives and rare disease organizations in a discussion on why it is critical to prioritize rare diseases on the global health agenda, notably through a WHA Resolution on Rare Diseases. The event aims to explore how to address an existing unmet need in healthcare by calling attention to the challenges faced by PLWRD and their families and showcasing successful initiatives developed worldwide, and to emphasize the importance of a WHA Resolution on Rare Diseases.

In particular, the event will:

1. Highlight the significance of investing in rare diseases within the context of UHC.
2. Discuss the significance of the WHA Resolution on Rare Diseases and what it will bring to the rare disease community worldwide.
3. Explore the challenges faced by research and development and innovation in rare diseases.
4. Showcase innovative solutions and financing mechanisms that can improve access to care for individuals with rare diseases and explore the link with the WHA Resolution on Rare Diseases and corresponding Global Action Plan.
5. Facilitate discussion and knowledge-sharing among stakeholders on best practices and future directions in health systems financing for rare diseases.

Limited free passes to the event and the World Health Summit are available to RDI Members on a first-come, first-serve basis. We invite you to attend our event in-person by contacting comms@rarediseasesint.org  to secure your place here:

Register here for the in-person event in Berlin.

If you will not be at the World Health Summit, you can also follow the livestream of the session on RDI’s social media channels – Register here for the online event.