COVID-19: Resource Centre

Access online resources designed by RDI member organisations to support the rare disease community through the COVID-19 pandemic.

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Developed by Regional Rare Disease Alliances

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Press Statement – EURORDIS calls for more equitable access to COVID-19 vaccines for vulnerable populations in Europe and worldwide

Open letter: Recommendations to protect people living with a rare disease during the COVID-19 pandemic

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Survey Findings “Impact of the COVID-19 pandemic on the international rare disease community”

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Survey Report “Managing Rare Diseases in Asia Pacific During COVID-19”


Developed by National Rare Disease Alliances

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Statements from Rare Disease Patient Alliances


Statements and resources from global partners and other vulnerable groups

World Health Organization (Information Hub)

World Health Organization – Call to action: Vaccine Equity

International Alliance of Patients’ Organizations (Information Hub)

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UHC2030, 23 March 2020 (RDI is a member of the international platform)

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International Disability Alliance (testimonies and resources)

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Survey Report –  The Impact of the Covid-19 Pandemic on Patients & Patient Organisations, European Patients Forum

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Care Guidelines from Rare Disease Patient Alliances and Disease-Specific Federations

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Other Rare Disease Resources