COVID-19: Resource Center

Click to access online resources designed by RDI member organisations to support the rare disease community through the COVID-19 pandemic.

Developed by Regional Rare Disease Alliances

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Developed by National Rare Disease Alliances

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Statements from Rare Disease Patient Alliances

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ALIBER – Iberoamerican Alliance for Rare Diseases, 21 March 2020 (ESP)

CORD – Canadian Organization for Rare Disorders, “Applying Lessons Lessons from COVID-19 to Better Healthcare for Rare Diseases”, 24 April 2020 (ENG)

NORD/ EURORDIS-Rare Diseases Europe Joint Statement on COVID-19 and Orphan Drug Legislation

FECOER – Colombiana de Enfermedades Raras , 22 April 2020 (ESP)

Pulmonary Hypertension Latin Society, 14 April 2020 (ESP)

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Statements from RDI’s Global Partners

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UHC2030, 23 March 2020 (RDI is a member of the international platform)

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WHO Director-General’s opening remarks at the media briefing on COVID-19, 8 April 2020

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Care Guidelines from Rare Disease Patient Alliances

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Instituto Vidas Raras – General Guidelines for Rare Disease Patients (ENG)