Financing Rare Diseases: Innovative Models Reshaping Access to Diagnosis, Treatment and Care

Scientific and medical advances in rare diseases continue to accelerate — but equitable access to diagnosis, treatment, and care remains out of reach for millions of people living with a rare disease.

This webinar offers a practical look at how innovative financing models can help close these gaps. The session will explore a range of financing mechanisms, including venture philanthropy, blended finance, public-private partnerships, solidarity funds, and outcome-based models. Through real-world examples, participants will gain insight into what makes these approaches work, the conditions needed for success, and how models can be adapted or combined across different health systems.

Building on the momentum of the WHA Resolution on Rare Diseases, the series aims to build a shared technical understanding of innovative financing models in the context of rare diseases, assess their feasibility across different country settings, and facilitate structured dialogue toward practical policy pathways.