General Assembly and Membership Meeting 2020

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The General Assembly and Membership Meeting took place on 18 May 2020 and brought together 54 patient representatives from RDI member organisations to adopt RDI’s Work Programme for 2020.

See the Action Plan and Budget for 2020 as well as the Activity Report and Financial Report for 2019 below.

2020-2021 Action Plan and Budget

2019 Activity Report

2019 Financial Report


Click to view Activity and Financial Report Presentation


The Membership Meeting was also the opportunity for members to meet newly-elected members of the Council, Alba Ancochea of the Spanish Alliance for Rare Diseases (FEDER) and Kin Ping Tsang of the Hong Kong Alliance for Rare Diseases (HKARD) and to be presented with the new By-Laws of RDI as an incorporated and legally-registered organisation.

As part of the Membership Meeting, RDI’s 2020 members’ survey on capacity building and advocacy was presented and discussed. The results of the survey will help guide RDI’s advocacy actions in the coming years and ensure that our capacity building programmes are designed to meet members’ needs and to empower the international rare disease movement.


Click to view survey results