For the First time, the 1st International UAE Rare Disease Society Congress aims to gather all the patients’ community who is suffering with rare diseases conditions with the help of our genetic scientists, clinical geneticists and different subspecialties for rare disease. This one-of-a-kind event will bring together important clinical practitioners, academics, and experts to debate […]
Get ready to embark on an unparalleled journey into the world of inherited bleeding disorders—which are rare diseases—at the WFH 2024 World Congress. Taking place in Madrid, Spain from April 21 to 24, the event is co-hosted by the World Federation of Hemophilia (WFH) and La Federación Española de Hemofilia (Fedhemo). With over 90 hours […]
The 2024 NORD® Living Rare, Living Stronger® Patient and Family Forum will be held in Los Angeles, CA at the Hilton Universal City on June 8. After six years, we are excited to bring this program to the west coast! This event will bring together the incredible rare disease community for a day filled with […]