On 24 July 2024, RDI was granted special consultative status with the United Nations Economic and Social Council (ECOSOC).
Consultative status will enable RDI to engage with ECOSOC, the Human Rights Council, and the UN system as a whole in many different ways. For example, RDI will be able to participate in sessions, events and conferences at the UN Headquarters in New York and the UN Offices in Geneva and Vienna. RDI will also be able to submit written statements on topics related to its areas of expertise to be circulated to the Council, and may in some cases be called upon to make oral statements.
RDI is now fully and formally equipped to continue and advance our work of representing and advocating for Persons Living with a Rare Disease at the United Nations.